Data Access and Usage in the Health Care Domain: toward Responsibility and Trust

5+6 June 2025 | Free University Bozen-Bolzano | University Club (Room F6)

Idea & Program

Data access and usage in medical research (clinical trials in particular) have become the new gold standard in the entire health care domain.

Access to and usage of this data, however, bear the potential of several “moral hazards” in terms of responsibility and trust which jeopardize their very usefulness and exacerbate long-standing critical tendencies in scientific research.

Open access to trial data, and transparency of related processes, is seen as a response to these hazards, and a means for restoring key warranties of the respect of human dignity which characterize sound scientific practice as well as medical care.

The conference brings together academics and practitioners in order to promote both the advancement of scientific research and the development of responsible practices and sustainable solutions in health data processing.

Program

Thursday, 5 June 2025

  • 16.00 Robert Simon (Euphur, University Bolzano)
    Introduction: Challenges of technology assessment
  • 16.45 Simona Tiribelli (Università di Macerata)
    On the AI Ethics Principle of Fairness in Healthcare Machine Learning

*** Break ***

  • 18.30 Ulrich Kelber (Bundesbeauftragter für Datenschutz 2019–2024)
    Datennutzung in der Medizin: Zwischen Fortschritt und Datenschutz – Die Rolle von Regulierung, Transparenz und Vertrauen?
    (con traduzione simultanea)

Friday, 6 June 2025

  • 09.00 Lars Pithan/Daniela Rieger (Nortal AG Berlin/Wien)
    X-Road and Opportunities for Crossborder Healthcare
  • 09.45 Vittorio Iacovella (Università di Trento)
    Data collections are not self-explanatory. Adopting standard metadata schemas by design fosters accurate data description, long-term preservation and responsible dissemination of information
  • 10.30 Sergiusz Kazmierski (Universität Regensburg)
  • Medical data from an ancient perspective

*** Break ***

  • 11.00 Stefan Gasslitter/Alessio Trazzi (SIAG Bozen)
    Development of AI-driven applications in health care in South Tyrol
  • 11.45 Pedro Kringen (ARCADA University Helsinki)
    Z-Inspection®: Navigating the Path to Trustworthy AI

Final Discussion