Data Access and Usage in the Health Care Domain: toward Responsibility and Trust
5+6 June 2025 | Free University Bozen-Bolzano | University Club (Room F6)
Idea & Program
Data access and usage in medical research (clinical trials in particular) have become the new gold standard in the entire health care domain.
Access to and usage of this data, however, bear the potential of several “moral hazards” in terms of responsibility and trust which jeopardize their very usefulness and exacerbate long-standing critical tendencies in scientific research.
Open access to trial data, and transparency of related processes, is seen as a response to these hazards, and a means for restoring key warranties of the respect of human dignity which characterize sound scientific practice as well as medical care.
The conference brings together academics and practitioners in order to promote both the advancement of scientific research and the development of responsible practices and sustainable solutions in health data processing.
Confirmed Speakers
Key Note: Ulrich Kelber – Federal Commissioner for Data Protection and Freedom of Information (2019–2024); Member of the German Bundestag (2000–2019)
Stefan Gasslitter – General Director of South Tyrol Informatics AG (SIAG).
Vittorio Iacovella – Researcher at Centro Interdipartimentale Mente/Cervello (CIMeC) at the University of Trento.
Pedro Kringen – worked 15+ years in the pharmaceutical industry and has an extensive knowledge of the field. His focus has been within the oncology, HIV and cardiovascular disciplines planning and conducting clinical trials globally, developing vaccines and working with start-up companies.
Daniela Riegler/Lars Pithan – Nortal AG (Nortal provides public and private sector clients data-driven business transformation; having planned and implemented most notably a large part of the digitalization of Estonia’s governmental e-services.)
Simona Tiribelli – Professor in Ethics, University of Macerata; Director for AI and Technology Ethics, Institute for Technology and Global Health, PathCheck Foundation, MIT Media Lab spin-off, US.
Robert Simon – Scientific director of the Euregio Platform on Human Dignity and Human Rights (EUPHUR) and speaker of the Euregio Trustworthy AI Lab (EUTRAIL).