Data Access and Usage in Health Care: Toward Responsibility and Trust

5+6 June 2025 | Free University Bozen-Bolzano | University Club (Room F6)

Resources and Pictures

Idea & Program

Data access and usage in medical research – clinical trials in particular – have become the new “gold standard” in the entire health care domain (and beyond).

Access to and usage of this data, however, bear the potential of several “moral hazards” in terms of responsibility and trust which jeopardize their very usefulness and exacerbate long-standing critical tendencies in scientific research.

Open access to trial data, and transparency of related processes, is seen as a response to these hazards, and a means for restoring key warranties of the respect of human dignity which characterize sound scientific practice as well as medical care.

The conference brings together academics and practitioners in order to promote both the advancement of scientific research and the development of responsible practices and sustainable solutions in health data processing.

Program

Thursday, 5 June 2025

  • 16.00 Robert Simon (Euphur, University Bolzano)
    Introduction: Challenges of technology assessment
  • 16.45 Simona Tiribelli (Università di Macerata)
    On the AI Ethics Principle of Fairness in Healthcare Machine Learning

*** Break ***

  • 18.30 KEY NOTE SPEECH
    Ulrich Kelber (Bundesbeauftragter für Datenschutz 2019–2024) !!! –––> Room D 1.02 !!!
    Datennutzung in der Medizin: Zwischen Fortschritt und Datenschutz – Die Rolle von Regulierung, Transparenz und Vertrauen?
    (con traduzione simultanea)

Friday, 6 June 2025

  • 09.00 Lars Pithan (Nortal AG Berlin)
    X-Road and Opportunities for Crossborder Healthcare
  • 09.45 Vittorio Iacovella (Università di Trento)
    Data collections are not self-explanatory. Adopting standard metadata schemas by design fosters accurate data description, long-term preservation and responsible dissemination of information
  • 10.30 Sergiusz Kazmierski (Universität Regensburg)
    Back to the Future of Medicine. Trust and Responsibility in the Hippocratic Oath

*** Coffee Break ***

  • 11.30 Deborah Mascalzoni (EURAC Bolzano)
    Population Studies and Biobanking: for a Strong Trustworthy Data Ecosystem in the Val Venosta CHRIS STUDY
  • 12.15 Pedro Kringen (ARCADA University Helsinki)
    Z-Inspection®: Navigating the Path to Trustworthy AI
  • 12.45 Stefan Gasslitter/Alessio Trazzi (SIAG Bozen)
    Development of AI-driven Applications in Healthcare in South Tyrol

15.15 Round table with Maurizio Borghi (Università di Torino), Daniela Riegler (Nortal AG Vienna), Ivo De Gennaro (Free University of Bozen-Bolzano), Ralf Lüfter (Free University of Bozen-Bolzano) and the speakers of the conference

Final Discussion and Conclusions